Namine saw several doctors in a morning-long cleft palate clinic appointment.
There was a discussion on one of the Facebook groups I belong to on how and when to educate one’s child on surgery. I responded there with a simplified version of what follows, but I have more to say (as I usually do).
Jessica, Namine, and I gave another talk to the bioengineering class at Marquette University.
We had to go to the hospital so the pharmacy could refill Namine’s medication.
Jessica, Namine, and I were invited to speak at the Children’s Hospital of Wisconsin medical college.
A few years ago, Namine made up a song and sang it for us.
Namine met with her pulmonary doctor. We were met with unexpected good news.
Namine’s yearly appointment with her cranial-facial doctor was bittersweet; he’s retiring, so today we said goodbye.
The dark underbelly of the special needs community is the dislike of the label of “special needs” itself. That, combined with the fact that many able-bodied people are writing and speaking for disabled people (both by professionals and caregivers), can be a recipe for disaster.
Losing the Affordable Care Act would be devastating. Without it, my daughter would most likely be dead.