trach
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Pulmonary appointment
Namine met with her pulmonary doctor. We were met with unexpected good news.
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Make A Wish: the trip home
We started on our trek home today. Since we’re driving back, and not flying, it’s going to take three days, instead of three hours.
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Throwback Friday
Yesterday Namine asked me if I could show her some videos of her when she was a baby. Here’s a couple that she really likes.
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Smoothie time!
We picked up a little blender the other day. It brought back some bittersweet memories, and we created some new ones.
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Dental appointment
Namine had an appointment in the local clinic providing family & general dental services. We have some hard decisions ahead of us.
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Keep your chin up
September 5 is Pierre Robin Sequence (PRS) Awareness Day!
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On needing a trach
A friend of ours had a new baby recently. Namine has been enamored with her.
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Look what we found
In cleaning our room yesterday, we found an old saline vial from Namine’s trache days. This brings back some memories.
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A throwback post
My Aunt CR came across some pictures and videos of Namine from 2010. Man, was she a little peanut.
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Rug burns are awesome
Physical therapy has always been a part of Namine’s life, and it always will be. She has to work harder to do things that just come naturally to other children.
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For the better
I belong to a few support groups, one in particular being a Facebook group for Pierre Robin Sequence awareness. A question was posed today: A question to parents with older PRS kids. what has having a child with PRS taught you, how has it changed you as a parent/person?
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Breathing easier
Namine had a pulmonology appointment the other day. She came away with good news: she can now start to be weaned off her inhalers.