Namine met with her pulmonary doctor. We were met with unexpected good news.
Make A Wish: the trip home
We started on our trek home today. Since we’re driving back, and not flying, it’s going to take three days, instead of three hours.
Yesterday Namine asked me if I could show her some videos of her when she was a baby. Here’s a couple that she really likes.
We picked up a little blender the other day. It brought back some bittersweet memories, and we created some new ones.
Namine had an appointment in the local clinic providing family & general dental services. We have some hard decisions ahead of us.
Keep your chin up
September 5 is Pierre Robin Sequence (PRS) Awareness Day!
On needing a trach
A friend of ours had a new baby recently. Namine has been enamored with her.
Look what we found
In cleaning our room yesterday, we found an old saline vial from Namine’s trache days. This brings back some memories.
A throwback post
My Aunt CR came across some pictures and videos of Namine from 2010. Man, was she a little peanut.
Rug burns are awesome
Physical therapy has always been a part of Namine’s life, and it always will be. She has to work harder to do things that just come naturally to other children.
For the better
Some thoughts of a special needs parent.
Namine had a pulmonology appointment the other day. She came away with good news: she can now start to be weaned off her inhalers.