therapy
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Someone likes school. A LOT.
Jessica and Namine were running late after therapy this afternoon. So late that Namine would miss half of her school day – although in this case “day” is only two and a half hours. So Jessica gave Namine the choice – go to school, or go home. The answer? “School!”
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I love watching Namine color!
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Special needs picnic
Today was the Children’s Hospital special needs picnic. We had quite a fun time last year, and we were looking forward to going again. This was the perfect opportunity to show off Namine’s wheelchair – but more importantly, her skill in navigating it.
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After the doctor visit
Namine’s doctor appointment came and went with little fanfare. She sounds great – with not so much as a cough now – and had no difficulty blowing the little pinwheel for the pediatrician. (She gets better and better at it every time. Speech therapists and pathologists would be proud.)
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Ear tubes and therapy
So Namine has been fighting this cold, cough – whatever it is – for a few days now. Since Friday, I think. She’s been seen by a doctor a few times; both at the pediatrician’s office and the Quick Care (or whatever it’s called) – because on Sunday, the pediatrician’s is closed. Each time, we…
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School orientation, for real this time
On Thursday, Jessica and Namine went to the orientation for her new school. Now that Namine’s health is under a little more control – she’s still congested (as am I now, so I think it’s just one of those things), but she isn’t really coughing anymore – I can devote a post to talking about…
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Liars, cheats, and IEPs
There are few things worse than finding out that someone has lied to you. You trusted this person, and they betrayed you. Deliberately, willfully, they lied. But the situation we’re left with is not the real problem – but where do we go from here, knowing that Namine’s teacher is willing to lie to us,…
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Echo results
On Friday Namine had her echocardiogram. Once again, like with Monday’s ultrasound, Namine was afraid of the tech and having the echo done. But when she realized that this was painless, she was fine. She lay perfectly still for the entire thing, much to the tech’s surprise.
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Appointments lately
Namine had an appointment at the ENT clinic the other day. The news was not surprising, and not very alarming, either. Namine still has an ear infection in her left ear, but thankfully it is only still in her left ear. We’ve already got ear drops, though, so we’ll be giving those to her until…
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Ear infection
Namine has an ear infection again. Unfortunately, she seems prone to them, especially given that she has pool therapy every week. But it’s a necessary thing, seeing as it was pool therapy that has helped her gain flexibility in her knees and strength in her legs. It was also thanks to pool therapy that she…
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IEP, the ER, and ABCs
I meant to update the other day with the results of Namine’s first IEP – not to be confused with a preliminary IEP – but we had to bring her into the ER. Things have calmed down a bit now, though, and I can finally catch you up.
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IEP today
This time it’s for real. Namine has had all the one on one meetings the school wants her to have had, I think, so now it’s time for everyone to gather around and discuss what’s best for her. That’s all well and good for them, but we’ll see how on the mark they really are.