speech
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The best day ever
I love the weekends. It’s not that I don’t have to go to work; it’s not that I don’t have to dress up – although “business casual” can hardly be considered dressing up compared to wearing a tie. It’s being able to spend the day with my family.
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Playing doctor
One of Namine’s Christmas presents was a fold-out tent and tunnel. I don’t have a picture outside of the tunnel (Namine wouldn’t come out), but here’s a similar one from Amazon. She was so excited while I was setting it up that she literally (and yes, I do know what it means when I say…
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Snow for Jesus
Today was quite a busy day.
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Cleft palate clinic
I can never remember if I’m supposed to refer to Dr. Denny’s team as the “cleft palate team” or just the “palate team.” I imagine it’s the latter, since the good doctor does all sorts or palate work. But since Namine had a cleft palate, that term just sort of stuck with us. At any…
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A night of cookies and meat
We had a nice night – “we” being Jessica, myself, Namine, Auntie Chyral (who can once again go by her real name now that Namine can say it), and our neighbors (Leah, Mike, and their daughter Alyssa). When Chyral and I arrived at my apartment this evening after work, the cookie-making session was already in…
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Hospital time
On Friday Jessica had a bone marrow biopsy. Let me back up a bit. Her platelets have been low for some time – for several years, if the doctor is correct. This had never come to our attention; so Jessica had to have a blood test done. Its results were inconclusive, thus the biopsy.
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Potty talk
Namine and I have a nightly routine. I give her a bath and she gets to play for a while (just how long depends on how early she gets in) – sometimes she wants me to play with her, sometimes not – she takes her medicine, we pray with Jessica, and she goes potty. Then…
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Things fall apart
I follow a wide range of people on Twitter – special needs parents and experts, individual programmers, as well as companies. I also follow a few joke accounts. A couple days ago, a tweet by @soveryawkward struck me to my core.
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School’s out
Jessica and I have decided to pull Namine out of school.
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Trick or treating
Holy late post, Batman! I meant to post about Halloween a while ago, but we’ve been kept busy with sickness and doctor appointments. So here, finally, I’ve finished writing about when we went trick or treating. (All things considered, I’m glad I was able to get the post out within a month of it happening.)
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Father-daughter time
Every night, Namine and I have a routine. She gets a bath, then she takes her medicine.
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School and therapy
We kept Namine home from school yesterday due to a fever. Because she can’t go to school until 24 hours after a fever, we’ll be keeping her home today as well. We took her temp before bed last night, and it looked like it was going down. Hopefully she’ll be able to go to school…