medication
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Out for a Monday drive
On my lunch break today I drove out to the medical supply store to pick up a nebulizer kit for Namine. This is the sad story of why I came back empty-handed, and more!
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Celebrating a healthy heart
Six months after completing the Fontan, Namine’s heart is doing phenomenally well.
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An exercise in frustration
I gave Namine an impossible task. She’s been working on it for two nights, with no sign of tiring. Contrary to how I thought she’d react, she has embraced it, eager to help and ready for more.
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Attention to detail
Namine seems to be fine once again with taking her medication. She understands – at least in broad strokes, if not in finer detail – what she takes and why. So I decided to test her.
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Better and worse
When Jessica gets sick, we hope she doesn’t need to be put on antibiotics because she’s allergic to so many. Namine has quite a few medical allergies, but not as many as Jessica. Yet.
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Sickness
After such a busy day yesterday, we thought that today would be a little more relaxed. We were wrong.
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A high-stress situation
I’m not a fan of surprising Namine with doctor visits. She knew that she had an appointment with her pediatrician this afternoon, but she didn’t know any details. She certainly didn’t know that she would be getting vaccinated, and I wasn’t about to tell her.
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The old yiddish proverb
Man plans and God laughs. — Yiddish Proverb After text messages, phone calls, and more phone calls, we finally know what’s going on. Maybe.
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All aboard the disaster train
Jessica and I have spent a good portion of the evening – now, the morning – on the phone. It seems that our understanding that Namine’s last dose of vancomycin was this evening at 8:00 is incorrect. But even that is not for sure.
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Cardiology and the PICC line
On Friday we went to see Namine’s cardiologist. On the agenda was the checkup and possible removal of the sutures in her chest incision, about which Namine was none too thrilled. Namine is often afraid of doctors and nurses on principle. But she’s often shown that when it gets down to the moment, she sheds…
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Cutting it close
We’re only provided a short supply of vancoballs and saline. We rely on the VNA to deliver more on time, as Namine’s medication must be given to her every six hours, without fail. It’s scary when we get down to the wire.
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Cooties to the nth degree
As we have found out firsthand, MRSA is no joke. Namine was in isolation the entire time she was in the hospital, and now the rules to follow at home are just as strict.