I gave Namine an impossible task. She’s been working on it for two nights, with no sign of tiring. Contrary to how I thought she’d react, she has embraced it, eager to help and ready for more.
Namine seems to be fine once again with taking her medication. She understands – at least in broad strokes, if not in finer detail – what she takes and why. So I decided to test her.
When Jessica gets sick, we hope she doesn’t need to be put on antibiotics because she’s allergic to so many. Namine has quite a few medical allergies, but not as many as Jessica. Yet.
After such a busy day yesterday, we thought that today would be a little more relaxed. We were wrong. Namine woke up this morning with a barky cough. The pediatrician’s office is closed on Sundays, and the Children’s Hospital Urgent Care (both in New Berlin and located on the CHW campus) don’t open until 11:00 on Sunday mornings. Fortunately, Namine was not having difficulty breathing, so we were able to wait until Urgent Care opened. We were glad we didn’t have to take her into the ER.
I’m not a fan of surprising Namine with doctor visits. She knew that she had an appointment with her pediatrician this afternoon, but she didn’t know any details. She certainly didn’t know that she would be getting vaccinated, and I wasn’t about to tell her.
Man plans and God laughs.
— Yiddish Proverb
After text messages, phone calls, and more phone calls, we finally know what’s going on. Maybe.
Jessica and I have spent a good portion of the evening – now, the morning – on the phone. It seems that our understanding that Namine’s last dose of vancomycin was this evening at 8:00 is incorrect. But even that is not for sure.
On Friday we went to see Namine’s cardiologist. On the agenda was the checkup and possible removal of the sutures in her chest incision, about which Namine was none too thrilled. Namine is often afraid of doctors and nurses on principle. But she’s often shown that when it gets down to the moment, she sheds the fear and lets the doctor (or physician’s assistant, in this case) do what he needs to do.
We’re only provided a short supply of vancoballs and saline. We rely on the VNA to deliver more on time, as Namine’s medication must be given to her every six hours, without fail. It’s scary when we get down to the wire.
As we have found out firsthand, MRSA is no joke. Namine was in isolation the entire time she was in the hospital, and now the rules to follow at home are just as strict.