We had to go to the hospital so the pharmacy could refill Namine’s medication.
Last week Namine had a cardiology appointment. It was just a routine check up.
Over the weekend, I took Namine in to the doctor. She had woken up with a barking cough and quite a lot of boogers, which tends to happen as soon as it gets cold.
Namine has shown an interest lately in drawing her own medicine. She’s always taken her medicine seriously (pun intended), mostly because we’ve always been honest with her from the start about why she has to take so much medicine at all. (And to be frank, she doesn’t have nearly as much medicine as she used to.)
Namine wants to be independent, so we’ve done some things to enable her around the house.
Nearly a year after completing the Fontan, Namine’s doctor cut back her medication as a response to her healthy heart.
Today is the second full day that Namine is completely off her pain medication, with no trace of pain — abdominal or otherwise.* As her health has improved, we’ve been able to resume her schooling. She’s very excited to be learning again.
We took Namine to the pediatrician. Yes, again. She still has a nasty-sounding cough — even after being on steroids to help with inflammation, antibiotic, increased inhalers, and a nebulizer — and the persistent bugger shows no sign of letting up.
On my lunch break today I drove out to the medical supply store to pick up a nebulizer kit for Namine. This is the sad story of why I came back empty-handed, and more!
Six months after completing the Fontan, Namine’s heart is doing phenomenally well.