jaw distraction
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Holy crap, an update
Yes, kids, it’s been a while since our last update. I blame hospital visits for that one.
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Health update
In case you were wondering, Namine hates shots. The other day, she got her Synagis shot (for RSV) – and at least one other, I’m pretty sure – but there was too much to give in one go. So even though the dosage was for a single shot, they gave her one in each leg.…
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Distracting Namine
Namine had a doctor’s appointment earlier this week. We took her in to see Dr. Denny, her plastic surgeon, who looked at her jaw and distractors; he said she’s doing better than he expected. (We get that a lot.) He told us to keep on with the distracting process through Sunday, then to bring her…
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Not home yet
We had planned on Namine coming home yesterday, but that didn’t happen because she’s had more secretions than usual. We then hoped that Namine would come home today, but now that’s not happening, either. Namine has a potential trach and lung infection. She also has a possible C-diff infection. This is a severe bacterial infection…
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Today
Namine has had quite a busy day. She was sitting and playing and visiting with Great Grandma and Great Grandpa and watching it snow. Namine also has hit the stage of stranger danger. It has not been fun all day. Everyone that has come into the room that was not family she cried and clung to…
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Contentedness and misery
I am home now. The plan is to get some sleep – actual sleep in my own comfy expensive bed – before going back to the hospital tomorrow morning, then going to work. But first, an update! Because much has transpired in a single day, and it feels like we’ve been there a week. We…
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What time is it?
I’ve been up all night, trying to make sure Namine doesn’t pull out her distractors. Even through the haze of drugs and wooziness of a tiring day, she still makes plain her dislike of artificial attachments.
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Jaw distraction complete
Namine’s jaw distraction surgery is done and she’s doing well!
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Surgocalypse Now
After a hard morning, Namine is in surgery now. Waiting and not knowing is always hard.
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Clinic Visit
Good news from the plastic surgeon, plus more excitement than we planned for.
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Jaw distraction on Dec 1
The post title says it all. As we said before, Namine’s jaw distraction would occur sometime last this year or early next year. But Jessica got a call today from Children’s Hospital that they would do Namine’s distraction on December 1 of this year. Needless to say (but I’m going to say it anyway), we’re…
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Visiting the plastic surgeon
Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…