·  Spooky is a dryer setting.

jaw distraction

What time is it?

I’ve been up all night, trying to make sure Namine doesn’t pull out her distractors. Even through the haze of drugs and wooziness of a tiring day, she still makes plain her dislike of artificial attachments. She has a fever of 102.something. I don’t know right now what they can do. Once rounds start this…

Jaw distraction on Dec 1

The post title says it all. As we said before, Namine’s jaw distraction would occur sometime last this year or early next year. But Jessica got a call today from Children’s Hospital that they would do Namine’s distraction on December 1 of this year. Needless to say (but I’m going to say it anyway), we’re…

Visiting the plastic surgeon

Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…

Bronchoscopy

Today, kids, Namine had her bronchoscopy. According to Wikipedia (since everything on the Internet must be true), a bronchoscopy is “a technique of visualizing the inside of the airways for diagnostic and therapeutic purposes.” Sounds good to me. The purpose of this, as it relates to The Feisty One, was to determine if she needs…

Tests, naps, and road trips, oh my

Welcome to our new virtual home on the interwebs, eichefam.net. Since is the new family website, this’ll be home to more than just Namine’s blog, but not to worry! Just click on Namine’s name under the categories there on the right. Or just go to eichefam.net/namine and you’re all set. I hope everybody enjoyed their holiday…

Jaw Distraction

Hello to Everyone, Paul and I brought Namine in to see Dr. Denni this past Monday to find out when she will be able to have her jaw distraction done, so we can remove the trac and g-tube. It was mostly bad news but some good news. We have to ween her faster off of…

Holy Cow Where Has The Time Gone!

Hello everyone, I am so sorry that we have not been keeping up on this. It is has been a long and fantastic ride being home. We have celebrated our very first holiday home!!!! YAY!! We almost thought that we weren’t going to be able to. She came down with a viral infection the week…