hospital
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More surgery tomorrow
Namine goes back into the hospital tomorrow to have her casts redone. These things are never enjoyable. We can only hope that she’ll only be in the hospital for one night.
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Back home from the hospital
Namine came home from the hospital today. Much has happened, most of which I’ve already talked about – her stoma closure, her foot surgery, and the upcoming re-casting. And now we’ve got even more: g-tube removal!
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Comforts of the familiar
Namine is doing slightly better today. She’s still in pain, yes, but she’s showing more of herself, in spite of being groggy from the morphine. She gave kisses today at lunch, and signed “I love you” to me, Jessica, and other family members.
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Uncertainty
The main problem with becoming a parent is the lack of instruction manual. It’s worse with a child who has special needs – no two children are the same, and even with something more common like autism, one parent’s methods are not going to be the same as another’s. With something much rarer like caudal…
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Foot surgery today: post-op
Namine came out of surgery at 3:30, but of course spending time with her is more important. I’m heating up some dinner in the parents’ lounge now, so I should have enough time to give you all an update.
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Foot surgery today: stoma closed!
Procedure one of two, the closure and suturing of Namine’s tracheostoma stoma, is complete. Now, onto the orthopedic procedure, fixing her club feet.
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Foot surgery today: pre-op
Well kids, we’re here at the hospital. As usual, expect several posts today, as I’ll make a post after each update from the nurse.
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Ramping up
We got a new couch over the weekend. Well, not a new couch. It’s new to us. And orange, if that matters. The poor couch we had before was definitely on its last legs (pardon the pun). We’d bought it before Namine came home the very first time, and for the first several months of…
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Stoma care: using Mepilex instead of gauze
The question of keeping Namine’s tracheostomy stoma covered was raised in my mind. Since decannulation, we’ve kept it covered with gauze. It seems like she’s coughing when she has the gauze on, but when we take it off, she doesn’t cough as much or at all. So I called the ENT department at Children’s Hospital…
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GI clinic appointment
The idea of Namine being tube-free is, for lack of a better word, epic. Namine hasn’t used her g-tube in quite a while – months, now – so it makes sense to get rid of it. With it still in, we’re still constantly battling pain, granulation, potential infection (being basically an open wound, like the…
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Good news and bad
The good news, of course, is that Namine came home from the hospital yesterday.
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Still in the hospital
Namine will be in the hospital for at least tonight, maybe tomorrow night as well. She still has an infection, and she’s still coughing up mucus, though admittedly it’s not green mucus anymore. Her disposition has improved quite a bit, though she’s not quite her usual lively (and hungry) self. We’ll get there, though.