Femoral Facial Syndrome
Femoral Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.
-
Pain managed, time to break free!
Namine was given the all-clear to go home! We just had to wait for our discharge papers.
-
Foot laceration pain management
With the larger threat of infection all but removed, the focus now is on pain management.
-
Foot laceration complications
The pain in Namine’s foot from her fall was so out of control that we ended going back to the ER.
-
My tipped wheelchair
My dad wrote about when I tipped my wheelchair. This is what happened, from my point of view.
-
Tipped wheelchair and foot laceration
Namine’s wheelchair fell on top of her. Fortunately, she did not break any bones. She did suffer a pretty nasty cut on her foot.
-
Picking out new glasses frames
We took Namine to get her new glasses.
-
Zipper shoes
Namine has settled on a pair of shoes she likes and likes to wear.
-
Dental checkup
Sometimes an uneventful appointment is preferable.
-
Leg pain scare
Namine’s leg was caught in the sliding door of the van. Fortunately, nothing is broken.
-
Covid booster
Namine was finally able to get her third Covid shot.
-
Teaching herself to swim
Namine taught herself to swim at Disney World.
-
Freshman year orientation
Who told our daughter she could grow up?