Adaptive bike fitting
Namine was measured for a new hand-crank bike! 🚴♀️
femoral facial syndrome
This Is How We Roll Fashion Show 2019
Namine had a wonderful time rolling down the runway in her second fashion show!
My panic attack during a school play
Namine recently had a few roles in her acting school’s adaptation of Romeo & Juliet. She gave me a panic attack, but that’s on me, not her.
Happy National Walking Day
Today is National Walking Day . As it happens, Namine had physical therapy today, too. Namine tells anyone who will listen that her lifelong dream is to walk on her own. Because she was born with Caudal Regression Syndrome, her legs cannot yet support her weight. She’s not about to let that stop her, though!
At the Purple Giraffe
Namine picked out her outfit for her upcoming fashion show!
A wild ride
Namine likes to push the little shopping carts they have in grocery stores. They can be a little uncontrollable sometimes, though. (Sounds kind of like a ten year old I know.)
Yelling at police
We went to the mall and encountered some accessibility ignorance.
New bed frame
Even since we got Namine a new bed four years ago, we left it on the floor. Well, not anymore: now it has a frame.
StoneFire Pizza
Namine and her friends from ballet class spent the afternoon at StoneFire Pizza.
Dance studios and disability
Ellen Stumbo (whose blog you should be reading anyway, she’s excellent) writes about her negative experience in attempting to enroll her daughter who has Down Syndrome in dance class. (As usual, I have plenty to say on the topic too.)
