Femoral Facial Syndrome
Femoral Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.
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Foot laceration complications
The pain in Namine’s foot from her fall was so out of control that we ended going back to the ER.
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My tipped wheelchair
My dad wrote about when I tipped my wheelchair. This is what happened, from my point of view.
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Tipped wheelchair and foot laceration
Namine’s wheelchair fell on top of her. Fortunately, she did not break any bones. She did suffer a pretty nasty cut on her foot.
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Picking out new glasses frames
We took Namine to get her new glasses.
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Zipper shoes
Namine has settled on a pair of shoes she likes and likes to wear.
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Dental checkup
Sometimes an uneventful appointment is preferable.
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Leg pain scare
Namine’s leg was caught in the sliding door of the van. Fortunately, nothing is broken.
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Covid booster
Namine was finally able to get her third Covid shot.
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Teaching herself to swim
Namine taught herself to swim at Disney World.
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Freshman year orientation
Who told our daughter she could grow up?
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CHD awareness week
Let’s talk about CHD awareness.
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New orthopedic doctor
We met Namine’s new ortho doctor today.