decannulation
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News!
Hello all, It was a not so fun and fun day today. We had a visit back at teach vent clinic where they took a trach asperate, or culture, to see what is growing if anything. As we ran some errands I got a call for different breathers for Namine. While on the phone the…
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Trach infection pretty much confirmed
As we count down the days toward the result of Namine’s sleep study, we have a new wrench thrown in the works: a trach infection.
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Picnic day, part 2
I never got a chance to post about the rest of our picnic day, when we went to my uncle’s for the Eiche family get-together.
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After Namine’s sleep study
Kids, as much as I’d like to tell you that Namine had her trach taken out today, alas, I cannot. Contrary to what we were told by lying or possible willful ignorant trach/vent nurses, decannulation is not that simple. We have to wait a week for the results of her sleep study, and then we…
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Sleep study
This’ll be a quick post, because I’m writing from my phone. Namine is asleep now, but she wasn’t happy. She’s got wires all over her head to monitor her stats, and a cannula up her nose to monitor her carbon dioxide. Considering she’s breathing through her nose, I’m a little concerned. Right now, she’s statting…
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Fair weather
We went to the Wisconsin State Fair yesterday. Well, I just went after work, but Jessica and Namine spent the afternoon there. It was a good day for it; maybe too good, since I think Namine is feeling a little crispy today. Despite a little sunburn and some sore legs, though, a good time was…
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OrthopIDIOTS
It’s like in Home Alone 2, where Kevin’s mom asks the concierge, “What kind of idiots do you have working here??” He replies, “The finest in New York, madame.” The 23rd of July, a Friday, was Namine’s scheduled foot surgery, and they canceled that. They told us they would call us back the following Monday.…
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Club foot repair canceled
We got a call this morning from Children’s Hospital. Due to the weather, Namine’s orthopedic surgeon, Dr. Thometz, would not be in today. As a result, her surgery is canceled. They will reschedule sometime early next week.
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Happy birthday Namine!
Namine turns 2 today! She’s come so far in such a short time, but it doesn’t feel like a short time. We’ve been through so much, and she’s just as strong, if not stronger. Judging by how sassy she is lately, she is definitely 2. I think she’s most likely eat more cake this time…
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From vacation to decannulation
It’s always hard to get back into the swing of the daily routine after a vacation, even a small one like a 3-day weekend. (Of course, the nature of Namine’s condition and medication needs still require a semblance of routine, even on vacation. But it was still nice to relax and to be able to…
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Namine’s trach/vent clinic visit
Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we…
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Namine’s palate
It just rolls off the tongue: “Namine’s cleft palate.” For nearly two years, it’s been that way. So whenever I say it or type it, it’s still those three words. But no longer! It’s been a week since her palate, no longer cleft, has been repaired.