decannulation

  • Holy crap, an update

    Yes, kids, it’s been a while since our last update. I blame hospital visits for that one.

  • Clinic Visit

    Good news from the plastic surgeon, plus more excitement than we planned for.

  • Jaw distraction on Dec 1

    The post title says it all. As we said before, Namine’s jaw distraction would occur sometime last this year or early next year. But Jessica got a call today from Children’s Hospital that they would do Namine’s distraction on December 1 of this year. Needless to say (but I’m going to say it anyway), we’re…

  • Visiting the plastic surgeon

    Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…

  • Bronchoscopy

    Today, kids, Namine had her bronchoscopy. According to Wikipedia (since everything on the Internet must be true), a bronchoscopy is “a technique of visualizing the inside of the airways for diagnostic and therapeutic purposes.” Sounds good to me. The purpose of this, as it relates to The Feisty One, was to determine if she needs…

  • Home On Monday!

    Hello Everyone, Namine is coming home on Monday, February 2nd. Great Grandpa has a great birthday present:) Namine is doing well. She has recovered surprisingly well after having this heart surgery. She is down to 30% oxygen not only on the vent but on her trac collar and doing fabulous. She is stating in the…