Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Trick or treating
My dad accompanied me and Namine while we went trick or treating around the neighborhood, and then some.
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Trick or treat at the firehouse
We took Namine to an indoor trick or treating event at the local firehouse.
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Presentation at MCW
Jessica, Namine, and I gave our annual talk on equipment and accessibility at the Medical College of Wisconsin.
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FrankenStein’s Haunted Mansion
We had a lot of fun at Variety’s annual trick or treat event at Stein’s!
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Fall Fest
Namine had a great time at her second homecoming dance!
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Spooky Shop
Namine and I went to a local outdoor vendor event.
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Mysterious stomach pain, again
Namine spent nearly a week in the hospital due to mysterious abdominal pain.
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Evening baseball
Namine had another excellent baseball game!
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Complex Care picnic
We attended the Complex Care annual picnic!
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Fall baseball
Namine played a late evening baseball game to kick off the fall season.
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New wheelchair
Namine’s new wheelchair was delivered today!
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Zoo A La Carte
We spent the day at the zoo!