Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
-
Our late Christmas
We celebrated our Christmas late, and with an extra family member!
-
A California Raisins Christmas
Jessica and I share a nostalgia for the “California Raisins” Christmas special. We found it and introduced it to Namine.
-
Christmas with Jessica’s family
We celebrated Christmas with Jessica’s family.
-
Cookie day
Our yearly Cookie Day tradition brings family together, despite life’s busyness.
-
Bowling field trip
Namine’s experience at a bowling field trip underscores the values taught in her virtual school, emphasizing kindness and respect.
-
Enchant Christmas
We went to the Enchant Christmas event with a lot of family members!
-
Flu complications
Namine was experiencing abdominal pain again, so we brought her back to the ER.
-
Thanksgiving
We had a wonderful time with my side of the family for Thanksgiving!
-
Holiday folk fair
We brought Namine’s cousin with us to the International Folk Fair!
-
Chess tournament
Namine participated in her first chess tournament.
-
Planning the hernia repairs
Namine has two hernias to be repaired, and an ovarian cyst to be removed. We have a plan to address these, but there are complications.
-
Aspiring geologist
Namine had fun with a couple geology gifts.