Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Easter games and crafts
We learned about an Easter event at a local (but not to us) church!
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Make-A-Wish fundraiser
I am participating in a Make A Wish challenge and fundraiser in March. Here’s why.
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Cyst removal recovery
Namine was discharged from the hospital, and much sooner than expected.
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Cyst removal
Namine’s cyst removal was successful, but she did not have either hernia removed.
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A short story: Zombie Catastrophe
Namine wrote a short story based on a dream she had.
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Honor roll
We are very proud of Namine for making the honor roll this past semester!
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Surgery preparedness
We met virtually with the doctor organizing Namine’s upcoming three-part surgery.
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SmartDrive evaluation
We met with therapists and our wheelchair provider to evaluate Namine’s need for new equipment.
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Switching vehicles
We drove away from the dealership with a new vehicle, but not exactly the one we wanted.
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Renovations
Through the county’s waiver program, our bathroom and garage ramp have been rebuilt for improved accessibility.
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Art project and shopping
The latest social activity with The Ability Center was an art project and shopping event at Michael’s.
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Christmas on New Year’s Eve
We had one more Christmas to celebrate, which we did right before the new year!