Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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MRI: now, we wait
We got up super early this morning in order to get to Children’s Hospital for Namine’s MRI.
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Eye appointment
Namine had an eye exam today, and it went well.
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A throne of blocks
I was going through some pictures, and I came across these and thought they’d make for a great flashback Friday post.
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Team Namine’s shirt design
I’m happy to announce that Team Namine’s T-shirt design is officially approved, and will be printed on our shirts!
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Cleft Palate Clinic picnic
This weekend we attended a new Children’s Hospital picnic for the first time!
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Flashback Friday
I know it’s been a while since the Herma Heart Center Picnic, but I wanted to share these pictures.
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Dental appointment
Namine had a dentist appointment today, and it was a doozy.
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Roller racer
Today in therapy, Namine got to try something new.
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A day of picnics
We had two picnics to attend today: one for the Herma Heart Center, and the other for the Variety Club.
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Flashback Friday: baseball
With Namine’s first full season of the YMCA Miracle League baseball coming to a close, I thought was only appropriate to do a #ff post.
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Last baseball game
Tonight was the last Miracle League baseball game.
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Back to baseball
Namine loved being back at baseball.