Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Basketball
Namine has shown improvement in her first week back to basketball.
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Determined dancer
Namine is working harder than ever in dance.
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Namine’s first cliffhanger
As a voracious reader, it was only a matter of time before Namine encountered a cliffhanger.
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Museum field trip
We all had a great time on Namine’s field trip to the museum.
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Banished from dance
No, Namine isn’t banished. It’s me. I’m writing this as I sit out in the lobby of Namine’s dance studio.
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All-Star game
Namine had a great time at her last baseball game of the season.
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A new year of dance
Despite not having her walker, Namine enjoyed herself immensely in dance class.
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Al’s Run
Namine and I had a great time running the 8K in Al’s Run!
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Leg complications
Namine had a doctor’s appointment today, in which we revisited the aftermath of her broken leg.
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Sleepover
Last night Namine spent the night at her friend’s house.
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Team Namine shirts
I’m very happy to announce that Team Namine now has its shirts!
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MRI: home again
We’re back home from Namine’s MRI.