Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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School at the doctor
We had a pretty long morning at the doctor’s office yesterday, but that didn’t keep Namine from doing schoolwork.
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That new car accessibility
Our new car enables Namine to be a little more independent.
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Dribbling practice
Namine’s hard work in basketball practice is starting to pay off.
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Teamwork
Namine describes the cooperation between herself and her coach.
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Waiting up
The assurance of safety goes both ways.
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Fenestration follow-up
Namine’s fenestration might not be closed after all.
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American Girl trip
Last Saturday my sister Ann and I took our girls down to Chicago for a day at the American Girl Store.
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Valentine’s Day bulletin board
We knew those toilet paper tubes would come in handy.
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Basketball
Namine’s first day back to basketball in the new year went quite well.
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Expectations and reality
Making the best of an imperfect situation.
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Twist Car in therapy
Namine brought her new bike to therapy.
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Game night
We stayed in for New Year’s Eve. We had a fun game night, Namine stayed up until midnight, and we all rang in the new year together.