Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Microphone stand
For Christmas, Namine received a little microphone and stand. The stand was perfect for us to use in a little homemade physical therapy.
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Dance decisions
Namine told me about a decision she made about her upcoming recital.
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Growing girl
We’ve been told repeatedly that Namine’s legs would stop growing, but it hasn’t happened yet.
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Dental appointment
Namine had a dental checkup today. The time for her jaw expansion draws ever closer, but not as close as we thought.
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Basketball practice
After being out for a few weeks, Namine enjoyed coming back to basketball practice.
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Robin Hood
We went on a field trip with Namine’s school to see a play.
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Presentation at Marquette
This afternoon Jessica, Namine, and I gave a presentation to an engineering class at Marquette University.
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Tripoli Circus
Namine and I had a great time at the Tripoli Three-Ring Cirus.
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Tournament disappointment, again
Last year was Namine’s first basketball tournament, or at least it was supposed to be. Unfortunately, she didn’t get to play. She didn’t get to play this year either, but for an entirely different reason.
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On school and support
Every year since Namine was four, we get these memories that show up in our “On This Day” Facebook feed. The memory in question is about us pulling her out of school.
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A nighttime conversation
I think my own dad would give his seal of approval.
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Valentine’s Day treats
The cooking class on making Valentine’s Day sweets was a delicious experience!