Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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The Wizard of Oz
For two days, Namine participated in her school’s production of The Wizard of Oz.
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End of the year school presentation
To close out the school year, Namine and her class presented some of the things they learned.
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Tour de Force on TMJ4
A local news station did another piece on the Milwaukee Ballet’s Tour de Force program!
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Tour de Force recital
The Tour de Force ballet classes gave their performances in front of family and friends. ♿
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Spring training
The new season of Miracle League baseball has started! ♿⚾
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Dental and the ER
Namine got the rest of her braces, but she also had an allergic reaction to her pre-appointment antibiotic.
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Cardiology appointment
Namine saw her heart doctor this afternoon. Everything appears to be fine, pending the heart monitor’s results.
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Heart monitor
Namine has to wear a heart monitor for the next week.
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Easter candy hunt
We attended Muskego’s 46th annual egg hunt! 🥚
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Late night ER visit
When a heart patient tells you something is wrong, you listen.
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Adaptive bike fitting
Namine was measured for a new hand-crank bike!
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State testing
We spent two days in Rothschild, Wisconsin for Namine to take her fifth grade state testing.