Remembering the trach
Tonight, after Namine’s bath, she and I were in her room. I was just watching her play, but it’s such a pleasure for me. I love to see that she’s happy, and she loves having her room, a place all her own. She had to do her breather and take her medicine before play time,…
A night in, and a video
Last night Jessica wasn’t feeling very well, so after dinner I turned off the lights in the living room so she could sleep on the couch, and played with Namine in her room.
Getting the ball rolling
We made the call today to general surgery, in order to get things in motion for Namine to have her next two surgeries: g-tube removal and hernia repair.
Getting back into the normal swing of things is pretty difficult. Yesterday afternoon Jessica asked Namine if she wanted to go out for ice cream, sure that the answer would be a resounding “yeah!” But to her surprise, Namine said no. “Why not?” Jessica asked. Namine responded, “Ha-ha! Eye meam!” She didn’t like that I…
A good Friday
We made it up here to Aunt CR’s house without incident, despite idiot drivers. (A pox on you, semi drivers. May your children have webbed feet!) It was crazy windy, though. Madness! But I digress. We had a wonderful evening here, with wonderful homemade potato soup and breadsticks. Namine ate two breadsticks, plus one of…
A night without incident
Last night was calm and free of any falling out of bed, I am happy to say.
Worth waiting for
At about 3:30 this afternoon, Namine was discharged from the ER. Thankfully, she does not have any broken bones. But in my opinion, we’ll only stay lucky for so long; her right leg is bruised, and we’re not sure how much it hurts her. She may have woken up crying this morning, but she doesn’t…
Falling out of bed
Namine fell out of bed again this morning. I try to never make the same mistake twice, however, so she fell onto a lot of pillows, which I’d stacked next to her bed, in case this happened again. She woke up and started crying when she hit the pillows, but she seemed to be just…
Moments worth celebrating
There’s a word that circulates the special needs community, that I come across now and again. That word is “inchstone” – as opposed to “milestone.”
The pleasure of eating
I woke up this morning with a headache. Usually, that’s neither here nor there, because I always wake up with a headache. But it’s usually a small one, and it’s usually gone by mid-morning. But this one was a doozy, and it was because I had a nightmare. Nearly all of my nightmares have to…
After therapy this afternoon, Jessica is going to take Namine to the pediatrician.
It was a nice day today, so Namine got to draw with chalk on the sidewalk outside today. Jessica took a short video of her, and I’ve uploaded it for your viewing pleasure. You even get to see the little smarty pants give some attitude near the end.