April 2011

  • Embracing the storm

    I actually meant to talk about this the other day. On Sunday night we had a crazy, windy, loud thunderstorm, and Namine could not sleep.

  • Video made of awesome

    Words fail me. Click the link. Click it!

  • Chest x-ray results

    What the title says. Unfortunately, “Namine is not sick anymore” is not part of it. We’re still fighting whatever she has – whatever is giving the raspiness in her chest. On the plus side, though, Dr. Gordon is back in town and we got the okay to bring Namine in for a chest x-ray. Thanks…

  • A call and a promise

    Namine’s cough is still present; worse, it seems to have deepened. We suspect it has gotten into her lungs. So we called the special needs doctor on call – unfortunately, Dr. Gordon is out of town – and the woman who called us back is an idiot. Yes, I frequently put my foot in my…

  • Again to the ER

    The night was not kind to Namine.

  • Sicker tonight

    I am sitting in the living room typing this post, with the baby monitor sitting next to me so I can hear Namine’s every cough. It’s taking me a lot longer to type tonight’s up, with many a break in my train of thought because every time she coughs, I run into her bedroom. Each…

  • The strength of a child

    You might recall, from before all the excitement about Namine getting her own room and the genetics appointment, that Namine has a cough.

  • Monitoring growth

    I had originally meant to cover everything about the genetics clinic visit in a single post, but you know me. I get a little long-winded. So I decided to split it up, and now I’ll cover what I consider the truly meaningful stuff that came of the’s appointment.

  • By any other name

    Today Jessica and I took Namine to her genetics appointment. It wasn’t so much for her benefit, however, as it was for ours, as her caregivers and advocates.

  • Taking down the Easter Tree

    I’ve got a confession to make: our Christmas decorations are still up.

  • Third time’s the charm

    Namine woke up this morning, crying and coughing. When I heard that wheezing, barking cough, I thought, Oh no. Not the croup again.

  • Pain and progress

    Namine is a peculiar combination of tough and delicate.