October 2010
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Foot surgery today: post-op
Namine came out of surgery at 3:30, but of course spending time with her is more important. I’m heating up some dinner in the parents’ lounge now, so I should have enough time to give you all an update.
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Foot surgery today: stoma closed!
Procedure one of two, the closure and suturing of Namine’s tracheostoma stoma, is complete. Now, onto the orthopedic procedure, fixing her club feet.
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Foot surgery today: pre-op
Well kids, we’re here at the hospital. As usual, expect several posts today, as I’ll make a post after each update from the nurse.
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Looking ahead to surgery
Since we switched out Namine’s stoma gauze for Mepilex, she’s been almost completely free of coughing. Score one for the thinking parent. Pretty soon, though, she won’t need anything to cover her stoma, because she won’t have a stoma to cover.
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A couple more videos
I had taken a bunch of pictures of Namine at dinner tonight, but apparently my phone decided they were corrupt. So, I only have one picture of her to upload tonight, posing for me with her princess wand. I did upload a couple more videos to Youtube, however.
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Hi5 Namine!
Namine sat up by herself in the changing table again. She’s funny; sometimes she’ll refuse to accept any help, but sometimes she’ll be convinced that she needs it. Tonight was the latter.
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Wordless Wednesday
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Ramping up
We got a new couch over the weekend. Well, not a new couch. It’s new to us. And orange, if that matters. The poor couch we had before was definitely on its last legs (pardon the pun). We’d bought it before Namine came home the very first time, and for the first several months of…
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Through the eyes of a child
I’ve been talking more recently about Namine’s caudal regression. Not a whole lot is clear about it; what may or may not happen in the future, even the current state of her hips, legs, and feet, all of that – it’s uncertain. But one thing is for certain: she’s not a normal child. It’s evident…
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Sitting up by herself
I had the opportunity to see Namine sit herself up all by herself last night.
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An Afternoon at Grandma’s
This is Namine’s grandma, Michele Eiche. We got to spend the afternoon at my house because I wanted to get a little work done around my house! It didn’t happen! Namine is just too much fun to be with to waste time with laundry & dishes (they mostly got done tonight).
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Stoma care: using Mepilex instead of gauze
The question of keeping Namine’s tracheostomy stoma covered was raised in my mind. Since decannulation, we’ve kept it covered with gauze. It seems like she’s coughing when she has the gauze on, but when we take it off, she doesn’t cough as much or at all. So I called the ENT department at Children’s Hospital…