October 2010
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Knowing the facts: caudal regression
Namine’s diagnosis of caudal regression syndrome was complicated.
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Sickness and surgery
Last night Namine didn’t need any oxygen. It seems like with this cough and ear infection, she’s been kind of on-again-off-again needing the oxygen. But I put the pulseox on her after she was asleep, and she was satting at 88. I admit I was a little worried, because during her nap, she was dipping…
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A quick story
I am alone. My best friend, whom I am fortunate enough to have married, is asleep, perhaps dreaming of punching a gastroenterologist in the face. My little love is asleep, oxygenation high enough to justify leaving the mask off for the night. I alone am awake, thinking thoughts known only to me and God, though…
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GI clinic appointment
The idea of Namine being tube-free is, for lack of a better word, epic. Namine hasn’t used her g-tube in quite a while – months, now – so it makes sense to get rid of it. With it still in, we’re still constantly battling pain, granulation, potential infection (being basically an open wound, like the…
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A trip to the pumpkin farm
While everybody else sat at home watching some boring game, we took Namine to a pumpkin farm. She got to pick out her own little pumpkins, we took a hay ride, got lost in a corn maze, and picked out some large pumpkins, too. I think it’s safe to say that we had more fun…
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On growth and caudal regression
Namine seems to be doing well. She’s happy, active, and she’s keeping up with her usual appetite.