hospital
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One step ahead
Namine’s foot surgery is a week from tomorrow. The week prior to any surgery is fraught with second thoughts, dread, and frayed nerves. Are we doing the right thing? How do we know? These are just a couple of the questions that plague us – they plague us every time. We second-guess ourselves, but at…
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Pajama day
Between therapy and doctor & clinic appointments, Namine is one busy kiddo.
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Round and round we go
The most frustrating thing, I think, about Namine being a quote-unquote “special needs child” is not her medication, fragile immune system, or even doctor appointments. Perhaps a year or two ago I would have said differently, but now that she is stable, it’s dealing with the school system.
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Language of the heart
To me, music is the perfect language. Beyond mere words, it speaks to us is crescendos and valleys, an ever-changing, liquid speech that allows us to convey what we can scarcely articulate. Through a haze of pain and confusion, music allows me to reach Namine’s heart. To stop the fear, the tears, and all this…
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Heart cath successful
The good news about Namine’s heart cath is that the results are quite positive. The things her doctors feared do not exist, or are minor enough to not be cause for alarm – but more on that in a bit. The bad news – if it can be called that – is that she has…
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Tomorrow is the day
Well, we have the official word from Day Surgery for tomorrow’s procedure, Namine’s heart catheterization.
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Heart cath
I think we are getting closer to her third heart surgery, but we may not be there yet. She had some appointments this morning. Jessica was going to come and eat lunch with me after the doctor stuff, but Namine said she was tired and wanted to go home and rest.
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Cleft palate clinic
I can never remember if I’m supposed to refer to Dr. Denny’s team as the “cleft palate team” or just the “palate team.” I imagine it’s the latter, since the good doctor does all sorts or palate work. But since Namine had a cleft palate, that term just sort of stuck with us. At any…
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Hospital time
On Friday Jessica had a bone marrow biopsy. Let me back up a bit. Her platelets have been low for some time – for several years, if the doctor is correct. This had never come to our attention; so Jessica had to have a blood test done. Its results were inconclusive, thus the biopsy.
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An ear miss
Oh, don’t look at me like that. I couldn’t help it. Anyway, Namine had an impromptu ENT clinic visit yesterday. The night before, we thought we saw some drainage, much to our dismay. So we took her in.
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Improvement
Last week Namine had another (yes, another) ENT clinic appointment. Since Jessica was busy being The Amazing Human Taxi for her mom, it fell to me to take the munchkin to the hospital. Of course, I’d gladly do so anyway.
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Pending ear surgery?
Namine needing surgery on her ear is not a sure thing, not yet at least. After yet another ENT visit today, though, I think they’re as tired as we are. But I think no one is quite as tired of this as Namine. She threw up when she saw the doctor.