Heart surgery

Jessica, Namine, and I went to the hospital yesterday morning because Jessica’s mom Charlene was having heart surgery. We weren’t sure what precisely was being done — from what I understood, it wasn’t even clear yet to Charlene, either — but at the very least, the wiring in her pacemaker/defibrillator was being replaced. I am happy to say that the surgery went well, and she spent the night in the ICU for recovery.

2013 in review

Kids, this has been one crazy year. I can assure you, never did we think at the start of it that Namine would have endured half the stuff she has, to say nothing of getting a prosthetic and having heart surgery.

Therapy and tachycardia

I’ve seen all the videos Jessica has taken of Namine at physical therapy, of course. But I’ve only rarely attended Namine’s therapy sessions, because they are during the week when I’m at work. I took the day off today, though, to help Jessica and Namine through a day of appointments, so I had the opportunity to watch Namine walk on the treadmill. Not only did she impress me, but she did the best she’s ever done – and Jessica can attest that I am not exaggerating.

MRSA, MRSA, go away

Come again, some other… never. Yeah, let’s go with never. Namine’s pediatrician called us; the culture they took last week on her MRSA infection – or what was left of it – came back negative. This is great news, a step toward getting her taken off contact isolation status.

First day back since the Fontan

It wasn’t Namine’s first time back to therapy since her most recent heart surgery, of course. But it was her first time walking. Not just doing more at home, climbing on things – although no one was more thrilled than her when she got the green light to climb again – but really, truly working hard. And she did amazingly well.

School is in

Namine is feeling much, much better today. Heck, that much is evident by her appetite alone. She was feeling well enough for the first time in quite a while to do some schoolwork.