Namine’s cardiologist had great news. His timing, on the other hand, not so much.
Nearly a year after completing the Fontan, Namine’s doctor cut back her medication as a response to her healthy heart.
Jessica, Namine, and I went to the hospital yesterday morning because Jessica’s mom Charlene was having heart surgery. We weren’t sure what precisely was being done — from what I understood, it wasn’t even clear yet to Charlene, either — but at the very least, the wiring in her pacemaker/defibrillator was being replaced. I am happy to say that the surgery went well, and she spent the night in the ICU for recovery.
Six months after completing the Fontan, Namine’s heart is doing phenomenally well.
Kids, this has been one crazy year. I can assure you, never did we think at the start of it that Namine would have endured half the stuff she has, to say nothing of getting a prosthetic and having heart surgery.
I’ve seen all the videos Jessica has taken of Namine at physical therapy, of course. But I’ve only rarely attended Namine’s therapy sessions, because they are during the week when I’m at work. I took the day off today, though, to help Jessica and Namine through a day of appointments, so I had the opportunity to watch Namine walk on the treadmill. Not only did she impress me, but she did the best she’s ever done – and Jessica can attest that I am not exaggerating.
Come again, some other… never. Yeah, let’s go with never. Namine’s pediatrician called us; the culture they took last week on her MRSA infection – or what was left of it – came back negative. This is great news, a step toward getting her taken off contact isolation status.