Femoral Facial Syndrome
Femoral Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.
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More room for activities
We rearranged the living room and Namine’s bedroom so she would have more room for her wheelchair. ♿
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Out for a bike ride
It was a beautiful day, so I took Namine for a bike ride! ♿
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Helping out at Zachariah’s Acres
Service project or not, Namine always loves to help out at Zachariah’s Acres. ♿
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Tennis targets
Namine worked on hitting balls at stationary and moving targets in tennis.
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Return to MagiQuest
After two years, Magi Conia has returned to the realm of MagiQuest to save the kingdom!
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Tour de Force kickoff
A new season of Tour de Force ballet is starting soon. That means a brand new kickoff party and show!
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Tennis
The new winter session of tennis practice has started!
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Bumping down backwards
Namine has started to go down curbs and single steps backwards on her own!
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Braces tightening
A routine tightening of Namine’s braces brought with it the opportunity to choose a new color!
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Climbing into the van
When we first got our van, Namine took particular advantage of one its accessibility features. Now, she doesn’t need to.
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Much Ado About Nothing
Namine played three roles in her school’s production of a 30 Minute Shakespeare play.
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Inclusive soccer
Despite the crazy amount of snow we’ve gotten, we finally got out so Namine could play soccer. ⚽