Femoral Facial Syndrome
Femoral Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.
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Flower girl dress fitting
We took Namine to get her fitted for her flower girl dress!
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Orthopedic appointment
Namine’s orthopedic surgeon gave her a clean bill of health, in spite of her hip still being in pain.
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Dental appointment
We received some unexpected news at Namine’s brace tightening.
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Bookworm Gardens
We spent the afternoon exploring a literature-themed botanic garden!
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Heart echo
Namine had her yearly echocardiogram and heart checkup.
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Therapy benches
Namine’s new therapy benches have finally arrived! ♿
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Video doctor appointment
Namine had her first virtual checkup.
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Accessible vacuum
We got a vacuum that makes doing chores a little easier for Namine. ♿
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Trying on new AFOs
Namine received her new foot braces today.
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Easter at home
Happy Easter from the Eiche family! ✝️🙌
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Online dance classes
The Milwaukee Ballet’s Tour de Force dance class is back — online!
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Outgrown AFOs
Doctor and therapy appointments don’t stop, even in a quarantine.