clinic

  • Therapy and tachycardia

    Therapy and tachycardia

    I’ve seen all the videos Jessica has taken of Namine at physical therapy, of course. But I’ve only rarely attended Namine’s therapy sessions, because they are during the week when I’m at work.

  • MRSA, MRSA, go away

    MRSA, MRSA, go away

    Come again, some other… never. Yeah, let’s go with never. Namine’s pediatrician called us; the culture they took last week on her MRSA infection – or what was left of it – came back negative. This is great news, a step toward getting her taken off contact isolation status.

  • Speech appointment

    Speech appointment

    We had an appointment today with the speech pathologist. (Yes, that one.) It went far better than I expected. In fact, we now have solid evidence that not only is Namine speaking better with the palatal prosthetic in, her speech is improved when she isn’t wearing it.

  • An exciting night

    An exciting night

    Namine was feeling much better by the time we got home from the urgent care clinic. At that point, it was quarter of eleven, so we ate our Fazoli’s and put her to bed. She was happy to go.

  • Eye appointment

    Namine had an eye doctor appointment this morning. Going to the hospital is nothing outside of routine for us, and this was just your normal checkup.

  • Cardiology appointment

    Cardiology appointment

    Yesterday afternoon Namine had a follow-up appointment with her cardiologist. Despite the long road of recovery, her chest incision is finally healing.

  • The palatal lift prosthesis is a mouthful

    The palatal lift prosthesis is a mouthful

    Namine has finally gotten her new palatal prosthetic.

  • Dentist appointment

    Dentist appointment

    Namine sees many different doctors, for many different things. A given week can easily be full of appointments – not a single day of staying home, for the most part. Today, though, was Namine’s most feared visit: the dentist. At least, that’s what we thought.

  • A high-stress situation

    I’m not a fan of surprising Namine with doctor visits. She knew that she had an appointment with her pediatrician this afternoon, but she didn’t know any details. She certainly didn’t know that she would be getting vaccinated, and I wasn’t about to tell her.

  • Bravery unmatched

    Bravery unmatched

    I am happy to say that Namine’s PICC line is finally out. It was a fairly uneventful process, with one minor hiccup. Namine never ceases to amaze me.

  • What matters most

    What matters most

    Yesterday we found out that Namine’s most recent x-ray shows evidence of a congenital defect in her right shoulder.

  • Another blood draw

    Another blood draw

    Remember those blood draws? Well, Namine had another one today, again to check her INR. They dropped her coumadin dose since last time, so here we are again.