Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Ready for school
Apparently, first grade can’t come soon enough.
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She’s a boots girl
Namine has always loved boots. She comes by that honestly enough — both my sister and I are suckers for a good pair of boots.
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Getting ready for first grade
Not long ago, the tub containing Namine’s first grade curriculum and supplies arrived. Today we unboxed it all and reorganized our school nook.
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Cream puffs!
When we went to the fair, one of the last things we did was get some cream puffs.
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AFO adjustments
I went with Jessica and Namine this afternoon to the orthopedic clinic. Namine had an appointment to have her right brace adjusted.
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At the state fair
Jessica and Namine went with my mom and sister to the state fair yesterday. My dad and I joined them after work.
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Unintentional injury
There are few things as disheartening as accidentally injuring your child.
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Bowling birthday party
We had offered Namine her choice of venue for where to have her birthday party. She chose to have it at the bowling alley.
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Stronger than ever
Namine had an orthopedic appointment today. She was nervous, as she is wont to be when it comes to doctors, but afterward she said it was silly to be so.
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Water and sun
When I got home from work, the first thing out of Namine’s mouth was “Daddy! Let’s go play in the water outside!”
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Stronger every day
Namine got her new braces — AFOs (ankle-foot orthotics), to be exact, although “brace” is just easier to say — last week. Her old braces were too small for her ever-growing feet, and she needed more support than her shoes could give.
