Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Playdates
For the past couple days Namine has had playdates, and she couldn’t have been happier.
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Bad timing
Namine’s cardiologist had great news. His timing, on the other hand, not so much.
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Training a child
We were in the car on Sunday, headed to the grocery store. “Daddy,” Namine said, “can you play the crystal Jesus song?”
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Hospital surprises
Namine’s frenulectomy has come and gone with no surprises. This is good; when it comes to surgery, we don’t like surprises. We did receive an unpleasant surprise on the day of surgery, however.
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Namine’s ALS ice bucket challenge
Namine was challenged by her friend Beanie from therapy to do the ALS awareness ice bucket challenge. Here’s her video.
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Home again
We made it home safely from the hospital. Namine is doing well, and in no pain.
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Frenulectomy complete
Namine is in recovery now, and she’s doing well. Her airway looks good, and we expect her to wake up soon.
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Bronchoscopy
Namine has a bronchoscopy and possible partial frenulotomy.
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Friends new and old
Jessica, Namine, and I made the drive up to Medford for Namine’s school orientation (which she’s been calling her “ornamentation”) today. We had a great time.
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Making pretzels
Namine got to pick little strawberries and help make pretzels and pretzel dogs.
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A busy day
Namine is such a tomboy, but sometimes she surprises us.
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No boys allowed
Namine’s writing gets better every time I see it.