Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Ragequit
I witnessed Namine’s very first ragequit while playing on the Wii yesterday.
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Smoothie time!
We picked up a little blender the other day. It brought back some bittersweet memories, and we created some new ones.
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2014 in review
I started out the year writing about Wolff’s Law. It seems fitting now, seeing how Namine has grown, and continues to grow — despite the assurances of doctors.
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Getting taller
Jessica sent me some pictures of Namine in therapy yesterday. I was amazed at how tall Namine is getting.
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Labels are dumb
I’ve taken issue with McDonald’s labelling their toys for a while now. Namine proved me right.
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In loving memory
Today is my father-in-law’s birthday, may he rest in peace. We celebrated by making an applesauce cake.
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Two days of Christmas
Driving back and forth between families is not usually looked upon as the best part of the holidays, but we had a lot of fun these past two days.
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Christmas dress
We didn’t have the chance to go shopping for Namine’s Christmas dress until this past weekend. By this point, most stores have already moved onto Spring clothing, so Christmas clothing was in short supply.
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Piano recital
Namine’s piano recital has come and gone, and she played very well.
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Cardiology
Namine had a follow-up to the Fontan procedure.
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Upcoming piano recital
As we get closer to Christmas, we get closer to Namine’s piano recital.
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Therapy morning
I just want my bed, please.