Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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New car!
I am pleased to say that we are the proud owners of a new car: a 2014 Ford Edge.
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At the circus
Yesterday we attended another Variety event. We had tickets to the Tripoli Shrine Circus, and Namine was very excited to go.
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How to make friends
Namine and I had a talk about staring.
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The way things are
At the mall yesterday, Namine gave us a lesson in acceptance.
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No jokes!
We had just gotten home from the store. I got Namine into her wheelchair, and started gathering the groceries.
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Love and googly eyes
I just mailed out TinySuperheroes Mission 11. Namine always loves crafts, but she especially took to this one.
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New desk
We rearranged the living room again.
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Namine’s wish
We found out not too long ago that Namine qualifies for Make A Wish.
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Roar ‘N Run
Something came in the mail for me, but it’s really for Namine.
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Field trip: rock climbing
Last Friday, we went on a field trip with Namine’s school.
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Outgrowing elongation
Namine has been complaining of her legs hurting. I think I know why.
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Accessories
Buying clothes for Namine can be tricky, and sometimes we end up with material to spare.