Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Climbing into the van
When we first got our van, Namine took particular advantage of one its accessibility features. Now, she doesn’t need to.
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Much Ado About Nothing
Namine played three roles in her school’s production of a 30 Minute Shakespeare play.
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Inclusive soccer
Despite the crazy amount of snow we’ve gotten, we finally got out so Namine could play soccer. ⚽
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Two days, three Christmases
We had a busy Christmastime! We celebrated with my side of the family on Christmas Eve, just the three of us Christmas morning, and then with Jessica’s side of the family in the afternoon.
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Elf musical
Namine and I joined my parents in seeing Elf the Musical. Actually, I think it was stylized as “ELF: The Musical.” 🧝🎵
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Cookie day
Another annual family cookie day has come. Namine had a blast helping to make hundreds of cookies.
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Nutcracker
Namine attended the Nutcracker with her friends from ballet class!
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Choir recital
Namine was in her first choir recital!
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Peter Pan
Namine played a Lost Boy in her school’s production of Peter Pan Jr.!
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Christmas party and a movie
Namine attended the Variety Club’s Christmas party!
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Putting up the Christmas tree
Namine helped me assemble the tree!
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Looks like cookies, tastes like cake
Our plan to make cookies didn’t quite go as planned, but they turned out all right in the end.