We always look forward to this time of year, and not because the weather starts to turn warm again (and then cold, and then warm… it’s Wisconsin, what can I say). No, each year the Medical College of Wisconsin asks us to be guest speakers in one of their classes. There’s a lot that students have to learn in any medical field, but what happens when the family goes home? What options does the family have when insurance balks at, or flat out denies, an equipment claim? That’s where our sixteen years of experience comes in.
Our yearly talk isn’t just about how Namine has grown, but it’s impossible to talk about all the equipment, accessibility, and insurance struggles without it. As they have grown up, their needs have changed. We explain how having someone handy in the family — hi, Aunt CR! — can help bridge the gap between what a child needs and what insurance will approve. (Do we, annually, bring up what an arbitrary and stupid rule it is that a child can only get a new wheelchair every five years? You betcha.)
Every year, our talk gets a little longer. That’s out of necessity, as Namine continues to grow and gain new equipment and new experiences. We talk about equipment, yes, but also the other organizations that have helped them along the way, like Katy’s Kloset, WASA, Miracle League, Milwaukee Ballet, and The Ability Center. There are so many people — not only hospital staff and family — who have helped Namine gain the confidence they need to go out into the world on their own. (Jessica and I are not ready for that day, not yet, but we will get there together, the three of us.)
It was a pleasure and a privilege, as it always is, to speak to future doctors, nurses, and other medical professionals and give our insight. We’re always happy to see their enthusiasm and answer their questions, and this year was no different.
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