Jessica, Namine, and I were invited to speak at the Children’s Hospital of Wisconsin medical college.
Namine’s heart continues to do well post-Fontan.
The dark underbelly of the special needs community is the dislike of the label of “special needs” itself. That, combined with the fact that many able-bodied people are writing and speaking for disabled people (both by professionals and caregivers), can be a recipe for disaster.
Losing the Affordable Care Act would be devastating. Without it, my daughter would most likely be dead.
This afternoon Jessica, Namine, and I gave a presentation to an engineering class at Marquette University.
Every year since Namine was four, we get these memories that show up in our “On This Day” Facebook feed. The memory in question is about us pulling here out of school.
Namine’s fenestration might not be closed after all.