double-inlet left ventricle heart defect
Double inlet left ventricle is a heart defect that is present from birth. It affects the valves and chambers of the heart. Children born with this condition have only one working pumping chamber in their heart.
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Al’s Run
We ran, walked, and wheeled in Briggs & Al’s Run in support of Children’s Hospital of Wisconsin!
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Cardiology checkup
Namine had a routine cardiology checkup today. She is doing well, but we learned of a potential future complication.
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State Fair
On the very last day of it being open, we made it to the Wisconsin State Fair!
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Cardiac MRI
A routine heart scan ended up being a pretty major milestone for Namine.
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Team Up For Fun Camp
For four days, Namine attended an accessible camp designed for children with disabilities. ♿
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Overnight hospital stay
After a late night visit to the ER, Namine was admitted to the hospital for a persistent cough, high fever, and low oxygenation.
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Dental and the ER
Namine got the rest of her braces, but she also had an allergic reaction to her pre-appointment antibiotic.
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Cardiology appointment
Namine saw her heart doctor this afternoon. Everything appears to be fine, pending the heart monitor’s results.
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Heart monitor
Namine has to wear a heart monitor for the next week. 💗
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Late night ER visit
When a heart patient tells you something is wrong, you listen.
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My panic attack during a school play
Namine recently had a few roles in her acting school’s adaptation of Romeo & Juliet. She gave me a panic attack, but that’s on me, not her.
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StoneFire Pizza
Namine and her friends from ballet class spent the afternoon at StoneFire Pizza.