Cleft palate clinic
Namine saw several doctors in a morning-long cleft palate clinic appointment.
Farewell, Dr. Denny
Namine’s yearly appointment with her cranial-facial doctor was bittersweet; he’s retiring, so today we said goodbye.
Cleft Palate Clinic picnic
This weekend we attended a new Children’s Hospital picnic for the first time!
With all the craziness lately, I never wrote about Namine’s most recent trip to the dentist last month. Some pretty important points were discussed.
Namine had an appointment in the local clinic providing family & general dental services. We have some hard decisions ahead of us.
Yesterday Namine had a clinic appointment to follow up on her frenectomy. Frenulotomy. Frenulectomy. Just pick a word, I guess.
Speaking a new way
On Thursday I took Namine to the speech pathologist at Children’s. He wanted to see and hear Namine speak with the prosthetic and without it. I had not put the prosthetic in because it makes Namine throw up. So we went without it, I still had it in my purse. Namine did her talking into…
Keep your chin up!
Thanks to the awesome folks over at Pierre Robin Sequence Foundation for including Namine in one of their promotional images.
For the better
Some thoughts of a special needs parent.
Tomorrow will be better
I don’t know if this really qualifies as a blog post, as it’s more of just rambling. But I’ve been reading up on Pierre Robin Sequence a bit more lately, in light of Namine’s prosthetic (with which she’s doing superbly well, by the way) as well as the search for comfortable glasses (on which I…
Contrary to how the saying goes, Namine has nothing close to contempt for her palatal prosthetic. Quite the opposite – she’s willing to put it in, and is doing quite well with the every-other-day plan prescribed by the speech pathologist.
We had an appointment today with the speech pathologist. (Yes, that one.) It went far better than I expected. In fact, we now have solid evidence that not only is Namine speaking better with the palatal prosthetic in, her speech is improved when she isn’t wearing it.