Speaking a new way

On Thursday I took Namine to the speech pathologist at Children’s. He wanted to see and hear Namine speak with the prosthetic and without it. I had not put the prosthetic in because it makes Namine throw up. So we went without it, I still had it in my purse. Namine did her talking into the microphone and that went well. He and I talked and I told him that the Pat (that’s what I call the palatal prosthetic; it’s just easier to say) makes Namine throw up, and she couldn’t eat with it in, she was just having an all over hard time with it.

For the better

I belong to a few support groups, one in particular being a Facebook group for Pierre Robin Sequence awareness. A question was posed today:

A question to parents with older PRS kids. what has having a child with PRS taught you, how has it changed you as a parent/person?