cleft palate
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Cleft palate clinic
Namine saw several doctors in a morning-long cleft palate clinic appointment.
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Farewell, Dr. Denny
Namine’s yearly appointment with her cranial-facial doctor was bittersweet; he’s retiring, so today we said goodbye.
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Cleft Palate Clinic picnic
This weekend we attended a new Children’s Hospital picnic for the first time!
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Dental clinic
With all the craziness lately, I never wrote about Namine’s most recent trip to the dentist last month. Some pretty important points were discussed.
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Dental appointment
Namine had an appointment in the dental clinic. We have some hard decisions ahead of us.
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Frenectomy follow-up
Yesterday Namine had a clinic appointment to follow up on her frenectomy. Frenulotomy. Frenulectomy. Just pick a word, I guess.
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Speaking a new way
On Thursday I took Namine to the speech pathologist at Children’s. He wanted to see and hear Namine speak with the prosthetic and without it. I had not put the prosthetic in because it makes Namine throw up. So we went without it, I still had it in my purse. Namine did her talking into…
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Keep your chin up!
Thanks to the awesome folks over at Pierre Robin Sequence Foundation for including Namine in one of their promotional images.
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For the better
Some thoughts of a special needs parent.
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Tomorrow will be better
I don’t know if this really qualifies as a blog post, as it’s more of just rambling. But I’ve been reading up on Pierre Robin Sequence a bit more lately, in light of Namine’s prosthetic (with which she’s doing superbly well, by the way) as well as the search for comfortable glasses (on which I…
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Familiarity breeds…
Contrary to how the saying goes, Namine has nothing close to contempt for her palatal prosthetic. Quite the opposite – she’s willing to put it in, and is doing quite well with the every-other-day plan prescribed by the speech pathologist.
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Speech appointment
We had an appointment today with the speech pathologist. (Yes, that one.) It went far better than I expected. In fact, we now have solid evidence that not only is Namine speaking better with the palatal prosthetic in, her speech is improved when she isn’t wearing it.