November is a month for awareness, the big one being breast cancer. Several of my Facebook friends have changed their pictures to have the pink breast cancer awareness ribbon; others have tinted theirs pink. November is also the month for prematurity awareness, and its color is purple. Premature birth is one of the major causes of death and problems after birth.
Yesterday Namine had an appointment with ENT to get the stitches in her neck removed. Jess took her to the clinic building, not the hospital. Namine is old enough that we can tell her what’s going on; sometimes she handles it well, and sometimes not. Well, this was a not day. I think the recent business with her feet has made her more afraid of doctors.
Since being decannulated, and especially since her stoma was closed, Namine has a much easier time talking. We’re continuing to teach her signing as well, and she’s improving every day. Of course she still signs quite a bit, which helps when we don’t understand her words. She’s still working on those consonants, but we hear the occasional “b” or “p” more and more often.
Another fun time, kids. What was supposed to be more or less a routine clinic visit turned into The Clinic Visit From Hell. Although there was some good news.
One of the people I follow on Twitter posted yesterday posted (and I’m more or less paraphrasing, since I can’t find at the moment the original tweet), “a child without boundaries is a child with much stress.” I’d like to chime in here.
With a title like that, you just know it was a fun time. Jessica had two reasons to call ortho this morning: to schedule Namine to be seen later this week, and to set up a weekly recasting schedule. Both of those things, however, share a single disadvantage. They require talking to a real live person.
As I write this, Namine’s pins have successfully been taken out of her ankles, we are all home, and she is blessedly, contentedly asleep in her own bed.
Going back on everything I’ve just said about not going into the OR again, Namine is going into the OR tomorrow. Part of it is more scheduling stupidity, but it actually turned out to be for our benefit.
I don’t have anything really new to share tonight, but as I try to post something about Namine every night (call this my own writing exercise, I guess), I’ll share with you what she did tonight after finishing her breathing treatments.
Namine continues to amaze us. After a recasting experience that can only be described as traumatic, she recovered quickly and easily. So much so that Jessica and I are forced to reconsider what we previously thought was an easy decision.