August 2010
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Picnic day, part 2
I never got a chance to post about the rest of our picnic day, when we went to my uncle’s for the Eiche family get-together.
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Horse therapy
Yep, you read that right. No, it’s not therapy for horses; it’s therapy for humans – Namine, specifically.
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Picnic day
We went to the zoo this morning for the CHW Herma Heart Center’s picnic. Namine got a free HHC t-shirt. (siblings could get free shirts as well, but parent have to pay. What a gyp.) We saw a couple of doctors (including Dr. Mitchell!) and some other people we recognized but couldn’t place.
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After Namine’s sleep study
Kids, as much as I’d like to tell you that Namine had her trach taken out today, alas, I cannot. Contrary to what we were told by lying or possible willful ignorant trach/vent nurses, decannulation is not that simple. We have to wait a week for the results of her sleep study, and then we…
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Sleep study
This’ll be a quick post, because I’m writing from my phone. Namine is asleep now, but she wasn’t happy. She’s got wires all over her head to monitor her stats, and a cannula up her nose to monitor her carbon dioxide. Considering she’s breathing through her nose, I’m a little concerned. Right now, she’s statting…
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Fair weather
We went to the Wisconsin State Fair yesterday. Well, I just went after work, but Jessica and Namine spent the afternoon there. It was a good day for it; maybe too good, since I think Namine is feeling a little crispy today. Despite a little sunburn and some sore legs, though, a good time was…
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So close, yet so far away
Every single department at Children’s seems to want to call my cell first, even though we tell them time and time again to call Jessica first. So they called me this afternoon – of course I can’t see which department it is, since the number that shows up is just the main line to the…
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OrthopIDIOTS
It’s like in Home Alone 2, where Kevin’s mom asks the concierge, “What kind of idiots do you have working here??” He replies, “The finest in New York, madame.” The 23rd of July, a Friday, was Namine’s scheduled foot surgery, and they canceled that. They told us they would call us back the following Monday.…
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The kids, they are a-changin’
Namine is getting so big, we can hardly believe it. I have some momentous news, and it involves wheels. We went to a special needs donation center called Katy’s Kloset – think of it as a Goodwill for disabled people, for lack of a better description – and found a little wheelchair for Namine.