August 2010

  • Foot surgery reschedule

    Or so we are led to believe. Ortho called today, and they want to put Namine back on the schedule for having her feet repaired.

  • Fatten her up already!

    Namine has had weight issues all her life. Right now she’s stuck at 17-18 pounds, and it doesn’t look like she’s going to put on more weight any time soon. It doesn’t make sense, because she’s obviously growing, getting longer, but she’s not putting on weight like she ought to. Naturally, her doctors scold us for not getting her to gain weight. We’ve tried. So has she, as you can see in the picture.

  • Much news

    Happy horse day! Today Namine had equestrian therapy, and Jess said she enjoyed it quite a bit. I’m told the benefits will far outweigh her smelling like a horse. I kid, I kid. But on to other serious matters. Namine also had a cardiology appointment, and I got a call from pulmonology about her decannulation. We finally have a set date, and it’s coming up soon. More after the jump!

  • Birthday photos complete

    Okay kids, I’ve uploaded the rest of the pictures. FileZilla hates me, but I got it done. I built the other page for the 8×10 photos too, so browse to your hearts’ content.

  • More pictures, less trach

    I had already uploaded all of the original pictures from when we took Namine to get her birthday pictures taken. Jessica asked me to upload all of the pictures that had effects done to them, such as sepia tones, black and white, et cetera. I’ve uploaded the 5×7 so far. I’ll try to get to the rest of them tonight.

  • Decannulation is a go

    As Jessica posted earlier, Namine passed her sleep study. This means one thing: decannulation!

  • News!

    Hello all, It was a not so fun and fun day today.  We had a visit back at teach vent clinic where they took a trach asperate, or culture,  to see what is growing if anything. As we ran some errands I got a call for different breathers for Namine. While on the phone the […]

  • Fries and ketchup, hold the fries

    We went out this evening, with the intention of stopping by the UPS store to pick up a package, going to dinner, and stopping by Jess’s mom’s apartment before heading back home. Let’s just say things didn’t exactly go to plan. That’s okay, though. We still had a fun time out together, and we got to see more of Namine’s love of ketchup. I need to take more videos.

  • Improvement, now with ketchup

    Namine seems to be getting a little better, now that she’s on the Tobi nebulizer and a steroid to help keep her wheezing down. She’s only coughed once since I put her to bed, and she didn’t even need much suctioning. Between finishing the breather and putting her to bed, though, she coughed up quite […]

  • Trach infection pretty much confirmed

    As we count down the days toward the result of Namine’s sleep study, we have a new wrench thrown in the works: a trach infection. We pretty much assumed as much, and Namine’s symptoms seem to confirm it. Her pulmonologist has prescribed an antibiotic – not Toby but something similar – and we just need to keep up with regular breathing treatments. Like, every 6 hours or so.

  • Possible trach infection

    Late yesterday and this morning, Namine has had a lot more secretions than usual. In addition, this morning her secretions have been mucusy (is that a word?) and yellow-green, and she’s been coughing and hacking. So Jess called Namine’s pediatrician and her pulmonologist for advice on what to do. Of course the first thing that pops into our heads is trach infection. We’re no stranger to them, of course, but trach infections are nothing to trifle with; they can easily be life-threatening if not treated quickly.

  • Another trip to the ER

    The saying goes that every gray cloud has a silver lining, but I think the reverse is true as well.