Foot surgery reschedule

Or so we are led to believe. Ortho called today, and they want to put Namine back on the schedule for having her feet repaired. The (tentative) date is October 18, but you’ll forgive me if I’m a little skeptical. I only hope her doctor doesn’t get stuck in Canada again.

Fatten her up already!

Namine has had weight issues all her life. Right now she’s stuck at 17-18 pounds, and it doesn’t look like she’s going to put on more weight any time soon. It doesn’t make sense, because she’s obviously growing, getting longer, but she’s not putting on weight like she ought to. Naturally, her doctors scold us for not getting her to gain weight. We’ve tried. So has she, as you can see in the picture.

Much news

Happy horse day! Today Namine had equestrian therapy, and Jess said she enjoyed it quite a bit. I’m told the benefits will far outweigh her smelling like a horse. I kid, I kid. But on to other serious matters. Namine also had a cardiology appointment, and I got a call from pulmonology about her decannulation. We finally have a set date, and it’s coming up soon. More after the jump!

More pictures, less trach

I had already uploaded all of the original pictures from when we took Namine to get her birthday pictures taken. Jessica asked me to upload all of the pictures that had effects done to them, such as sepia tones, black and white, et cetera. I’ve uploaded the 5×7 so far. I’ll try to get to the rest of them tonight.

Decannulation is a go

As Jessica posted earlier, Namine passed her sleep study. This means one thing: decannulation! The next step is to get Namine better. She’s still coughing and hacking quite a bit, and she needs to be fully recovered before they’ll take out the trach.

News!

Hello all, It was a not so fun and fun day today.  We had a visit back at teach vent clinic where they took a trach asperate, or culture,  to see what is growing if anything. As we ran some errands I got a call for different breathers for Namine. While on the phone the nurse relayed a wonderfully, awesome, stupendous bit of news.   Are you ready? I don’t think you are. Really you want to know, ready?  Here goes- Namine is sick! Haha just kidding. Well not but the most awesomest news in our world is……………….. Namine passed her sleep study!!!!!!! Which means she will be decannulated. We are so thankful to God. For all the people that have […]

Fries and ketchup, hold the fries

We went out this evening, with the intention of stopping by the UPS store to pick up a package, going to dinner, and stopping by Jess’s mom’s apartment before heading back home. Let’s just say things didn’t exactly go to plan. That’s okay, though. We still had a fun time out together, and we got to see more of Namine’s love of ketchup. I need to take more videos.

Improvement, now with ketchup

Namine seems to be getting a little better, now that she’s on the Tobi nebulizer and a steroid to help keep her wheezing down. She’s only coughed once since I put her to bed, and she didn’t even need much suctioning. Between finishing the breather and putting her to bed, though, she coughed up quite a bit of mucus. Yum. Her appetite doesn’t seem to be quite there yet, although she did prove her love of ketchup.

Trach infection pretty much confirmed

As we count down the days toward the result of Namine’s sleep study, we have a new wrench thrown in the works: a trach infection. We pretty much assumed as much, and Namine’s symptoms seem to confirm it. Her pulmonologist has prescribed an antibiotic – not Toby but something similar – and we just need to keep up with regular breathing treatments. Like, every 6 hours or so.