A hard night

Namine had a rough night.

She woke up a few times screaming, and it took us a while to get her calmed down enough to tell us what was wrong. She finally told me that her back hurt; so I rubbed it for a while, and when she said that it felt better, I laid her back into bed. That was somewhere around 3:30 this morning.

With Namine’s caudal regression being so visible, it’s easy to forget about the things we can’t see; one of those things is her scoliosis. Thus far, we’ve been told that while present, it’s not so bad that it requires corrective surgery. Yet. That’s always the qualifier: Dr. Black, Namine’s ortho doctor, believes that Namine may require intervention – whether that will be with a brace or surgery, we don’t know – with regard to her spine at some point in the future. Having just recovered from the club foot repair and skin grafts, I sincerely hope that she can go a little longer without more surgery.

But that may just be a parent’s worrying. First things first; we need to have her seen again in order to determine what might be going on with her back. Namine is seeing Dr. Black near the end of the month, so we’ll make sure to mention her back pain then. Perhaps she’ll need to wear a back brace, I don’t know. I do know that Namine has been complaining about her back fairly frequently lately, so we need to do something.

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