wheelchair
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School’s out
Jessica and I have decided to pull Namine out of school.
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Special needs picnic
Today was the Children’s Hospital special needs picnic. We had quite a fun time last year, and we were looking forward to going again. This was the perfect opportunity to show off Namine’s wheelchair – but more importantly, her skill in navigating it.
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Namine in her wheelchair
Just in case you haven’t seen pictures of Namine in her wheelchair, here are the most recent ones. Some of these were taken at school, and some at the doctor’s office.
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Preliminary IEP
This morning was Namine’s pre-IEP IEP. They called it the “preliminary IEP” – more like preliminary waste of time. We talked, we exchanged information, but no real decisions were made. We decided to make decisions, though. Does that count? After the meeting was said and done, nothing was committed. We signed a form or two,…
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Picnic day, part 2
I never got a chance to post about the rest of our picnic day, when we went to my uncle’s for the Eiche family get-together.
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After Namine’s sleep study
Kids, as much as I’d like to tell you that Namine had her trach taken out today, alas, I cannot. Contrary to what we were told by lying or possible willful ignorant trach/vent nurses, decannulation is not that simple. We have to wait a week for the results of her sleep study, and then we…
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The kids, they are a-changin’
Namine is getting so big, we can hardly believe it. I have some momentous news, and it involves wheels. We went to a special needs donation center called Katy’s Kloset – think of it as a Goodwill for disabled people, for lack of a better description – and found a little wheelchair for Namine.