wheelchair
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My daughter, the dinosaur
Today Jessica, Namine, my mom, my dad, and I went to Discover the Dinosaurs, an exhibit at the State Fair Expo Center.
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Seating clinic
Namine has had a lot of clinic appointments lately, the latest being at the seating clinic. The appointment at the seating clinic, where Namine goes for measurements and fittings for the wheelchair and walker, went well.
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Climbing into the car
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Surgery drawing near
We consider the benefits of the Fontan now versus later.
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Our day at the zoo
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We want the same thing
Namine is so easygoing most of the time, it’s easy to forget how stubborn and iron-willed she can be. Monday morning, she spent the first ten minutes of physical therapy stonewalling the therapist.
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IEP, again
Jessica and I had the IEP meeting – reevaluation? I’m not sure exactly – this morning. So we had a choice: either bring Namine with us at 7:45 this morning, or get someone to watch her. My mom was kind enough to come over and stay with her. The meeting didn’t take too long, fortunately,…
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Fearless
It wasn’t Namine’s first birthday party – that honor was given to her friend from HealthReach last year, I think – but it was her first time in a dance studio.
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Playing with the band
We always enjoy going to the Children’s Hospital Special Needs Picnic. Maybe I don’t need to capitalize all that, but that’s how I see it in my head. It’s important enough to us to merit the capital letters. To us, anyway.
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Noticing differences
Jessica, Namine, and I went to the zoo over the weekend with Jessica’s sisters Chyral and Melissa, and Melissa’s boyfriend Anthony.
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Foot pre-surgery
Since I woke Namine up this morning, she’s been excited. She knows – well, knew, since she’s been taken back for surgery now – what’s coming, and what it means. I’ll let her tell you in her own words: “I’m having foot surgery today, so I can have my feet fixed and I can walk…
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Round and round we go
The most frustrating thing, I think, about Namine being a quote-unquote “special needs child” is not her medication, fragile immune system, or even doctor appointments. Perhaps a year or two ago I would have said differently, but now that she is stable, it’s dealing with the school system.