sick
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Countdown to decannulation
Well, kids, we’re in the final week before Namine gets rid of her trach.
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More pictures, less trach
I had already uploaded all of the original pictures from when we took Namine to get her birthday pictures taken. Jessica asked me to upload all of the pictures that had effects done to them, such as sepia tones, black and white, et cetera. I’ve uploaded the 5×7 so far. I’ll try to get to…
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Decannulation is a go
As Jessica posted earlier, Namine passed her sleep study. This means one thing: decannulation!
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Improvement, now with ketchup
Namine seems to be getting a little better, now that she’s on the Tobi nebulizer and a steroid to help keep her wheezing down. She’s only coughed once since I put her to bed, and she didn’t even need much suctioning. Between finishing the breather and putting her to bed, though, she coughed up quite…
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Trach infection pretty much confirmed
As we count down the days toward the result of Namine’s sleep study, we have a new wrench thrown in the works: a trach infection.
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Possible trach infection
Late yesterday and this morning, Namine has had a lot more secretions than usual. In addition, this morning her secretions have been mucusy (is that a word?) and yellow-green, and she’s been coughing and hacking. So Jess called Namine’s pediatrician and her pulmonologist for advice on what to do. Of course the first thing that…
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Coughing fits are nothing to sneeze at
Namine was up all night a couple nights ago, coughing and hacking. She didn’t seem to wake up much – a few times crying, but I was able to sooth her back to sleep – but I doubt she got much rest. Last night was much better, she only coughed a couple times. She slept…
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Plastics appointment
Namine had an appointment this morning with her plastic surgeon, Dr. Denny, the man who did her jaw distraction and cleft palate repair. He has declared her palate completely healed, and she can eat whatever she wants again. Well, within reason.
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Fever, but less
Namine’s fever is lower now – down to 99.3. She’s definitely still sick, as her manner and crabbiness would indicate, but it’s still a small comfort knowing she’s getting better.
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Fever, still
Quick update. Namine had a fever of 103.8 last night, but it’s down to 101.3 now. She’s not eating much more than puffcorns and M & Ms, but we’ve been supplementing her with Pedialyte and water. Good thing, too, because she’s uh, been losing liquid, if you catch my meaning.
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Fever
Last night, Namine had a fever of 103. We called the doctor, and they said not to be overly concerned unless her fever topped 104. This morning, her fever was only down to 102.5. So we took her in to the doctor’s office, and they said to keep an eye on her, but we don’t…
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Namine’s trach/vent clinic visit
Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we…