Super long speech appointment

A long time ago (it sometimes seems to us), long appointments were the norm. I’m not just talking about a mere two or three hours; in the days of Namine’s infancy, it was typical to spend literally six to eight hours at the hospital.

Reacting to negativity

A question was asked on the Pierre Robin Sequence board:

As a parent to a special needs child, do you get offended when people ask “whats wrong” when they see a trach or something out of the norm with your child? how do you react to the question?