We had to go to the hospital so the pharmacy could refill Namine’s medication.
Jessica, Namine, and I were invited to speak at the Children’s Hospital of Wisconsin Med Applicaitons college.
A few years ago, Namine made up a song and sang it for us.
Namine met with her pulmonary doctor. We were met with unexpected good news.
Namine’s yearly appointment with her cranial-facial doctor was bittersweet; he’s retiring, so today we said goodbye.
The dark underbelly of the special needs community is the dislike of the label of “special needs” itself. That, combined with the fact that many able-bodied people are writing and speaking for disabled people (both by professionals and caregivers), can be a recipe for disaster.
Losing the Affordable Care Act would be devastating. Without it, my daughter would most likely be dead.
Namine had a dental checkup today. The time for her jaw expansion draws ever closer, but not as close as we thought.
This afternoon Jessica, Namine, and I gave a presentation to an engineering class at Marquette University.
Every year since Namine was four, we get these memories that show up in our “On This Day” Facebook feed. The memory in question is about us pulling here out of school.