Pierre Robin Sequence

Pierre Robin (pronounced “Roban”) Sequence or Syndrome (PRS) is a condition present at birth, in which the infant has a smaller-than-normal lower jaw (micrognathia) or set back from the upper jaw (retrognathia), a tongue that falls back in the throat and obstructs the airway (glossoptosis), and difficulty breathing. Most infants, but not all, will also have incomplete closure of the roof of the mouth (cleft palate), and is commonly U-shaped.

  • Visiting the plastic surgeon

    Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…

  • Sunday school and volleyball

    It’s been a full day. Kinda hard to believe that it’s already 4 in the pm, actually. The day flew by!

  • Bronchoscopy

    Today, kids, Namine had her bronchoscopy. According to Wikipedia (since everything on the Internet must be true), a bronchoscopy is “a technique of visualizing the inside of the airways for diagnostic and therapeutic purposes.” Sounds good to me. The purpose of this, as it relates to The Feisty One, was to determine if she needs…

  • Tests, naps, and road trips, oh my

    Welcome to our new virtual home on the interwebs, eichefam.net. Since is the new family website, this’ll be home to more than just Namine’s blog, but not to worry! Just click on Namine’s name under the categories there on the right. Or just go to eichefam.net/namine and you’re all set. I hope everybody enjoyed their holiday…

  • Finally:)

    Sorry everyone for not posting more often.  It has been quite a hectic past couple of months.  Namine has been home since March and doing great.  We spent two days in the hospital for heart monitoring and they called it equipmentitis.  She has been stating in the low 90’s to even 100% O2 stats at…

  • Jaw Distraction

    Hello to Everyone, Paul and I brought Namine in to see Dr. Denni this past Monday to find out when she will be able to have her jaw distraction done, so we can remove the trac and g-tube. It was mostly bad news but some good news. We have to ween her faster off of…

  • Holy Cow Where Has The Time Gone!

    Hello everyone, I am so sorry that we have not been keeping up on this. It is has been a long and fantastic ride being home. We have celebrated our very first holiday home!!!! YAY!! We almost thought that we weren’t going to be able to. She came down with a viral infection the week…

  • Home On Monday!

    Hello Everyone, Namine is coming home on Monday, February 2nd. Great Grandpa has a great birthday present:) Namine is doing well. She has recovered surprisingly well after having this heart surgery. She is down to 30% oxygen not only on the vent but on her trac collar and doing fabulous. She is stating in the…

  • Almost all tubes out. Also, pink!

    So Namine’s trach was put back in, making her a much happier baby. Her chest drainage tubes were also removed; her left and right arterial lines were removed, but the one in her arm is still in. They also made sure that her new G-tube is in correctly before they start feeding her. They may…

  • Long Overdue Update

    Hi, everybody. I apologize for the total lack of updates (something I promised myself I wouldn’t let happen).

  • Our Newborn Baby Girl

    We are now the proud parents of a newborn baby girl, Namine Olivia Eiche.