infection
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Good news and bad
The good news, of course, is that Namine came home from the hospital yesterday.
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Still in the hospital
Namine will be in the hospital for at least tonight, maybe tomorrow night as well. She still has an infection, and she’s still coughing up mucus, though admittedly it’s not green mucus anymore. Her disposition has improved quite a bit, though she’s not quite her usual lively (and hungry) self. We’ll get there, though.
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Namine’s stoma infection
Namine is in the hospital again. Following on the heels of last night’s post (actually, it was probably early morning) is the news that Jessica and my mom took her into the ER this morning.
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Countdown to decannulation
Well, kids, we’re in the final week before Namine gets rid of her trach.
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Improvement, now with ketchup
Namine seems to be getting a little better, now that she’s on the Tobi nebulizer and a steroid to help keep her wheezing down. She’s only coughed once since I put her to bed, and she didn’t even need much suctioning. Between finishing the breather and putting her to bed, though, she coughed up quite…
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Trach infection pretty much confirmed
As we count down the days toward the result of Namine’s sleep study, we have a new wrench thrown in the works: a trach infection.
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Possible trach infection
Late yesterday and this morning, Namine has had a lot more secretions than usual. In addition, this morning her secretions have been mucusy (is that a word?) and yellow-green, and she’s been coughing and hacking. So Jess called Namine’s pediatrician and her pulmonologist for advice on what to do. Of course the first thing that…
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Plastics appointment
Namine had an appointment this morning with her plastic surgeon, Dr. Denny, the man who did her jaw distraction and cleft palate repair. He has declared her palate completely healed, and she can eat whatever she wants again. Well, within reason.
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Namine’s trach/vent clinic visit
Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we…
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Namine’s palate
It just rolls off the tongue: “Namine’s cleft palate.” For nearly two years, it’s been that way. So whenever I say it or type it, it’s still those three words. But no longer! It’s been a week since her palate, no longer cleft, has been repaired.
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Sleep, perchance to dream
Namine is asleep, at last. Since we’re here in the hospital, and she’s feeling so crappy, we have temporarily suspended our rule that Namine is to nap no later than 5, maybe 6 in the evening.
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The path to recovery
Namine is asleep, so I think now is as good a time as any to update everyone on how she’s doing. The hardest thing a parent has to do, I think, is sit and watch their child in sickness, knowing they can do little to lessen the pain, and nothing at all to improve their…