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Polish Fest tomorrow
Tomorrow Jessica and I are going to be helping out our friend and neighbor Leah with the kids’ area at Polish Fest, down at the Summerfest grounds. We’ll be helping to set up the games and prizes, and assisting with running the games, crafts, and activities. This will be our second year helping out, and…
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Feeling the pain
In following with the doctor’s permission to let Namine scoot around, scoot she did. And scoot, and scoot, and scoot. By bedtime, she was cranky – not so much because it was bedtime, I think, but because she was in pain. She is still in recovery, after all, and she still needs to take it…
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Home once again
I don’t imagine any of you who read Namine’s blog care for my tendency for long-windedness, so I’ll keep it short. Namine was allowed to come home on Saturday, which was a wonderful surprise. She still has needs medication for the pain, but she’s being quite a little trooper. She’s not allowed to move around…
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Tummy surgery: complete
If I had subtitles, it would probably be “The miracle that no doctor could have foreseen.” But I’ll get to that.
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Tummy surgery: mid-point
The nurse in the OR just called in to the waiting room to inform us that they finished the g-tube removal and fistula closure. She didn’t say exactly how it went, but we remain optimistic because it only took them about an hour and a half. And they got the IV in on the first…
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Tummy surgery: pre-op
Namine has just been taken back into the operating room, so Jessica and I, along with Chyral and her boyfriend, have deposited ourselves into the waiting room. We expect to see more family before the day is out. (I was going to say “morning,” but it’s noon now.) We are told to expect about a…
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Cancelled?
A couple things might interfere with Namine’s scheduled surgery tomorrow, and for once, neither of them is sickness. Namine has remained pretty healthy – not even a cough or a sniffle – but complications at the hospital might make for a rescheduling or two.
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A magical experience
When Namine was smaller – she’s still small, but this was a lifetime away, when she was still, shall we say, mechanically dependent – we had taken her to a local pizza place called Organ Piper Pizza. They have the most amazing pizza, and the atmosphere is, you eat amazing pizza to awesome organ music.…
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Getting the ball rolling
We made the call today to general surgery, in order to get things in motion for Namine to have her next two surgeries: g-tube removal and hernia repair.
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Looking ahead
Getting back into the normal swing of things is pretty difficult. Yesterday afternoon Jessica asked Namine if she wanted to go out for ice cream, sure that the answer would be a resounding “yeah!” But to her surprise, Namine said no. “Why not?” Jessica asked. Namine responded, “Ha-ha! Eye meam!” She didn’t like that I…
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Love’s own reason
Perhaps you’ve heard; perhaps not. The divorce rate for special needs parents, according to word of mouth, is 85%. I’ve also heard 82%. Upon doing some research, though, it’s hard to know where this statistic came from, or exactly how old it is. (With the assumption that the divorce rate goes up each year, that…
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Clinic appointment
Namine had a clinic appointment yesterday with special needs at CHW. It was really just an overview of how she’s doing, and what’s coming up. The long and short of it is, she’s remarkably healthy – even despite her recent sickness and having the croup at the moment – and she’s got at least several…