I have had the pleasure of working with special needs children and adults for many years and have been taught many lessons from them. I have seen the stress and also the love of parents through the difficult and the exciting times. Each step forward is such a blessing. I hope one day to meet Namine. I already know her grandma!


You said it all.

I’ve been there—-trach, g-tube, the whole mess. My daughter was decannualated only 9 months ago. And right before she was born (and opening us up to the world of her medical issues) my husband was diagnosed with Young-Onset Parkinson’s Disesase (at age 34).

Yeah, we’ve had our ups and downs. But I think for the most part it’s drawn us closer. And we choose it. Am I always feeling loving? No. But I choose it.

Great post.

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